Friends, Romans, Countrymen, Lend Me Your Ears…

July 17, 2009 § 17 Comments

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In tonight’s comic adventure: Miss Waxie explains her month long absence from her beloved comic, finally sharing that her condition has been changed and a new course of treatment has been implemented. Fact is, at least so it seems now, Miss Waxie doesn’t have lupus or rheumatoid arthritis or CIDP or most of the autoimmune illnesses she’s been treated for. (You may remember the beginning of this story from a month ago.) She has a rare genetic condition, muckle wells (part of the cyropyrin associated periodic syndromes) and with this new diagnosis comes new treatments – both in the form of better fitting drugs and respect from doctors!

More dramatic than comedic? Maybe today. But the story behind living 23 years with a disease that’s been present since birth? Comic for sure.

Worry not dear readers, this comic is back. I hope you come back to read it, too.

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§ 17 Responses to Friends, Romans, Countrymen, Lend Me Your Ears…

  • Gary Miller says:

    That is absolutely brilliant news! God! The different emotions you must have felt…

    Fingers and toes firmly crossed for you this time; but it certainly sounds as if the doctors are now positive about diagnosis and can do something about it.

    Welcome back Miss Waxie! 🙂

  • autoimmunelife says:

    I’m glad to see you back! And I’m glad to hear that you are getting treatment for the correct illness now!!! How did they finally find that illness and what are the treatments? ((hugs))

  • RA Guy says:

    I’m SO happy to see you back – I’ve been missing you and your absolutely wonderful comic strips. What great news, that you and your doctors were finally able to come to a more determined diagnosis. So many of these autoimmune illnesses overlap, that I think it’s good that you persevered until you reached an answer that you seem comfortable with. I hope the new treatment helps you! In your month long break, RA Guy has finally moved into a pain-free inflammation-free (95% of the time) stage for the past 12 days…it’s been absolutely wonderful.

    Hope you’re having a great summer…we’re in the midst of winter down here south of the equator.

  • RA Guy says:

    P.S. If that photo of you in the last frame is a recent one, you are absolutely beaming! Eyes speak a lot.

  • erin says:

    I am so happy for you. i just can’t get over it.

    maybe a little jealous but mainly just insanely happy for you.

  • Michelle says:

    Snap!!! Honey, I don’t even have the words for you. (but I’m gonna try) I am so very glad that they figured out what is going on with you for sure, and definitely! Now you WILL get the treatment that you need, deserve, and are in no way responsible for, (some docs–psychosomatic my butt) thank God. It has to be mixed emotions though, and maybe a little scary? You have many friends out here, me included, that will lend an ear and a cyber shoulder.
    Soft hugs to you. I’m going to look up your rare genetic disease and see if there’s any weird sounding names associated with it so I can tease you..a girl’s gotta laugh!
    keep in touch and I’ll be on the lookout for your next installment.
    Be good to yourself,
    Michelle

  • […] Friends, Romans, Countrymen, Lend Me Your Ears… « A Comic Life, Indeed […]

  • Abi says:

    Oh – that’s good news! Thus speaks Little Miss Understatement. I am delighted to hear that you are actually going to get some suitable, targeted treatment! Fingers crossed that it goes well.

  • Gayle says:

    Love your blog, wonderful to see you’re back! A gorgeous face to go with that diagnosis. I am 3 mo. on the other side of kidney transplant. Thanks for your inspiration and making me smile.:)

  • Oh, the irony. My SO (significant other) had a congenital throat condition that was only DX a year ago. She saw so many doctors over 50 years…finally DX, surgery, a-hole anathesiologist and she woke up middle of surgery screaming in pain. AARRGGHH Tragedy and Comedy, only our outlook seperates them. I mean, seriously, isn’t life one big joke? (It certainly is when one is sick.)

  • Laurie says:

    Wow, great to hear you finally have a diagnosis and are on the road to feeling much improved! As you can tell from my own recent post, I can certainly relate. On top of that, I too was correctly diagnosed with a rare disease (at age 23) after being sick since the very moment of birth.It was a long road, but life is so much more stable once you know what you’re dealing with, and what you should do to manage it. Good luck!

  • Aviva says:

    Wow!! Mazel tov on getting a REAL diagnosis!! And how amazing how quickly getting treated properly for an accurate diagnosis can make a difference in how you feel!

    I’m SO happy for you!!!!!

    Good luck, and I hope things continue to improve as you undergo treatment!!

  • Priscilla says:

    Just discovered your great blog. And what a moment to step into your story. Really hoping you will get better now. Amazing.

    I also cartoon (very different style) on my blog. Am also sick.

    best,
    Priscilla

  • I am really glad to see that you are back! I am more glad to hear that they finally know what is going on with your body. It certainly says a lot about the medical profession. It is good that you can laugh about it though. Better to laugh than cry! Just think how amazing you will feel when this disease is under control. It must be a huge relief!

    So happy for you 🙂

    Jo-Ann

  • Annie says:

    I am happy to see you are back and I am happy that you finally got a diagnosis that is right!

    I eagerly await that day myself. Love the comics.

    Come visit me over at It’s Time To Get Over How Fragile You Are sometime!

    Annie

  • Andrea says:

    Great to hear that you are finally getting the right treatment. You’ve just got to hang in there, keep smiling and keep on creating this crazy comics- they are hilarious!

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