December 28, 2010 § 1 Comment
In tonight’s comic adventure: If misery loves company, than Miss Waxie’s forlorn stomach must be quite the sad and lonely little organ. After all, for what other reason would it hold on to breakfast, lunch, and dinner? Sure, the doctor calls it gastroparesis, a condition of delayed stomach emptying, and prescribes medication and a special diet, but Miss Waxie knows better; her poor tummy just needs a friend. Anyone got a working stomach lying around?
October 1, 2010 § Leave a comment
In Tonight’s Comic Adventure: It’s been a long summer, but finally, finally Miss Waxie is eating again with the help of an army of immunosuppressants and steroids. Armed with a some new “we don’t know what it is” cryopyrin associated periodic syndrome (CAPS) stomach problem – or some new autoimmune stomach problem – and idiopathic thrombocytopenic purpura – Miss Waxie is collecting new medical terminology faster than an an over stressed first year med-student.
On the positive side, the cellcept is working, the pred is coming down, and the ITP is under control enough that she no longer looks like a drug dealer’s girlfriend…she can practically hear her immune system plotting against her for daring to say things might be better. ….Bring it, immune system!
July 23, 2010 § 5 Comments
August 30, 2009 § 7 Comments
In Tonight’s Comic Adventure: Miss Waxie learns to love her greatest adversary as being taken seriously by the Cleveland Clinic has provided her a golden ticket into better medical care. Sure they might think she’s in a coma, but what can she say, the Cleveland Clinic kinda grows on you. Not unlike the MRSA they so rampantly spread through Ohio…
(Previously filed under Tales from the Clinic: Out with the Old, In With the Eugenics)
July 17, 2009 § 17 Comments
In tonight’s comic adventure: Miss Waxie explains her month long absence from her beloved comic, finally sharing that her condition has been changed and a new course of treatment has been implemented. Fact is, at least so it seems now, Miss Waxie doesn’t have lupus or rheumatoid arthritis or CIDP or most of the autoimmune illnesses she’s been treated for. (You may remember the beginning of this story from a month ago.) She has a rare genetic condition, muckle wells (part of the cyropyrin associated periodic syndromes) and with this new diagnosis comes new treatments – both in the form of better fitting drugs and respect from doctors!
More dramatic than comedic? Maybe today. But the story behind living 23 years with a disease that’s been present since birth? Comic for sure.
Worry not dear readers, this comic is back. I hope you come back to read it, too.
May 18, 2009 § 17 Comments
In Tonight’s Comic Adventure: Miss Waxie’s disease vocabulary expands tenfold as she finds herself faced with yet another possible diagnosis. Shocked, simply shocked at the possibility of hearing words like “manageable” and “better” in relationship to her lifelong battle with autoimmune disease, Miss Waxie finds herself hopeful…and fully confused by the notion. Not to mention, where does this leave her in terms of things like lupus, rheumatoid arthritis, cidp, and celiac….?
Dearest Readers, apologies for my absence. My brother graduated from college this week and between the trip to Washington, DC where internet was scarce and processing my most recent round of doctors’ appointments, I simply hadn’t a chance to update. I wanted to take a moment to thank you all for viewing; in just a month, this site has had over 2,000 hits. Take that doctors who claimed there was nothing special or interesting about my disease process!