Suddenly, Everything Has Changed…
May 18, 2009 § 17 Comments
In Tonight’s Comic Adventure: Miss Waxie’s disease vocabulary expands tenfold as she finds herself faced with yet another possible diagnosis. Shocked, simply shocked at the possibility of hearing words like “manageable” and “better” in relationship to her lifelong battle with autoimmune disease, Miss Waxie finds herself hopeful…and fully confused by the notion. Not to mention, where does this leave her in terms of things like lupus, rheumatoid arthritis, cidp, and celiac….?
Dearest Readers, apologies for my absence. My brother graduated from college this week and between the trip to Washington, DC where internet was scarce and processing my most recent round of doctors’ appointments, I simply hadn’t a chance to update. I wanted to take a moment to thank you all for viewing; in just a month, this site has had over 2,000 hits. Take that doctors who claimed there was nothing special or interesting about my disease process!
Wow! What a shocker that must’ve been for you! How do you feel now? Happier, elated, worried, frustrated…or what?
Sometimes, life throws you a curve ball. Do you swing for it…or let it go?
It’s…still very weird, a week later. Now the most frustrating thing is the wait – waiting until my eye surgeries are over to start a new diagnostic run through and treatment. I realize I’ve waited my whole life, but still…3 more week?! C’mon ump!
I do my best to always, always take a swing. Trouble is I keep fouling out…
I hope for you that it does turn out to be something that they can manage, and that maybe it’s all connected and they will finally (maybe) have some kind of answers for you!
As for the funniest part of this post – the last sentence you put in your note at the end!
I’m glad you have had so many hits, and keep blogging, we love you, and the way you do your blog!
This comment means so much to me. Thank you, thank you!!
Welcome back Miss Waxie, we missed you!
You got that right, the diagnosis period can be a true roller coaster ride – and that’s because I’ve through it only once. Stay strong and keep up posted on anything new – I’m always game to increase my vocabulary, even if it is medical terms…
I think there doesn’t need to be med school anymore. Those of us who’ve become honorary doctors in our own right from all the medicalese we’ve learned should just teach classes. I bet bedside manner would go way up!!
Thanks for your support RA Guy, I look forward to having new, exciting, bizzaro words to teach one and all.
yikes! sorry that you are back on that rollercoaster, but we are very glad that you are writing about it. Good to have you back, and fingers crossed…again.
thanks, Sara. Maybe crossed toes would help too? I don’t know about you, but mine are all arthritic, so their practically permacrossed anyway. …Think this means I’m extra lucky?
Keeping my fingers crossed that this new development turns into something that really CAN help you feel better and manage your disease. What a blessing that would be!!
Good luck on the upcoming eye surgery. And I’m glad you’re back — I missed you! 🙂
Thanks, Aviva! I’m trying to really put the cautious into cautiously optimistic on this one…but who knows, maybe just maybe it will work out… (I say as I knock on wood, throw salt over my shoulder, etc)
The rollercoaster of diagnosis sucks, I know from my own experience… I never want to get on that ride again, if I can help it, since I was on it for about a year before getting my diagnosis of Crohn’s Disease. Not to mention how hard it is to go through this stuff in your 20s… I’m the same age as you, actually! Here’s praying there’s something hopeful at the end of your ride. 🙂
Well I’m sorry the rollar coaster let you off at the Crohn’s stop, but I’m quite glad you got off it!!
Us 23 year olds in 100,000 year old bodies have got to stick together! Thanks for stopping by!
What a great blog! Thanks so much for commenting on mine (and for the encouragement.) It’s so nice to see someone put a “funny” spin on this terrible disease. I will be reading up and following. You’re now on my blogroll.
Good luck with the next series of tests, etc.
Thanks, I added you to mine as well. Hang in there!
Hope that your diagnosis roller coaster comes to a very happy ending – It’s so hard to know when to grab your seat and take the ride, or let the ride pass you by. I wish you all the best in making that decision, and all the ones that follow.
Well, you’re getting a lot of hits because your comic is pretty damn awesome. Good luck with the diagnosis roller coaster.
I have been reading your blog now for quite some time and really like it. I don’t know if it’s your style or not , but do you think you could perhaps do a post on the oil spill in the gulf?
I love your thoughts and opinions, and would love to see your commentary on this sad tragedy.