October 1, 2010 § Leave a comment
In Tonight’s Comic Adventure: It’s been a long summer, but finally, finally Miss Waxie is eating again with the help of an army of immunosuppressants and steroids. Armed with a some new “we don’t know what it is” cryopyrin associated periodic syndrome (CAPS) stomach problem – or some new autoimmune stomach problem – and idiopathic thrombocytopenic purpura – Miss Waxie is collecting new medical terminology faster than an an over stressed first year med-student.
On the positive side, the cellcept is working, the pred is coming down, and the ITP is under control enough that she no longer looks like a drug dealer’s girlfriend…she can practically hear her immune system plotting against her for daring to say things might be better. ….Bring it, immune system!
July 17, 2009 § 17 Comments
In tonight’s comic adventure: Miss Waxie explains her month long absence from her beloved comic, finally sharing that her condition has been changed and a new course of treatment has been implemented. Fact is, at least so it seems now, Miss Waxie doesn’t have lupus or rheumatoid arthritis or CIDP or most of the autoimmune illnesses she’s been treated for. (You may remember the beginning of this story from a month ago.) She has a rare genetic condition, muckle wells (part of the cyropyrin associated periodic syndromes) and with this new diagnosis comes new treatments – both in the form of better fitting drugs and respect from doctors!
More dramatic than comedic? Maybe today. But the story behind living 23 years with a disease that’s been present since birth? Comic for sure.
Worry not dear readers, this comic is back. I hope you come back to read it, too.