October 3, 2010 § 13 Comments
In Tonight’s Comic Adventure: Miss Waxie comes clean about her recent, semi-mortifying surgical procedures. ‘Course despite the intimate look a whole bunch of medical staff got at every nook and cranny her digestive tract had to offer, the embarrassment didn’t so much come from what they put down her mouth, but what came out of it! File this one under serious doctor drama. Or comedy.
Oh well, you know what they say, patients under anesthesia say the darndest things…!
May 8, 2009 § 13 Comments
In Tonight’s Comic Adventure: Miss Waxie takes a moment to enjoy a few victories. First, that she finally, kinda sorta got her perc prescription filled. And secondly, that despite what doctor’s here in Cleveland have said, the systemic celiac disease that she’d been diagnosed with in New York actually DOES exists. There’s victory in there, if you squint. It’s kind of like a magic eye.
May 3, 2009 § 10 Comments
In Tonight’s Comic Adventure: Miss Waxie brings you her somewhat belated “Blogging Against Disablism Day” submission – A story that could only come from “Tales Of the Clinic” wherein her Cleveland Clinic neurologist tried to deny her appropriate treatment for her peripherial neuropathy because it might one day, possibly, compromise her fertility. …Talk about your God complex!
A very special thank you to the great people at ChronicBabe for writing about me in their recent newsletter! (And hello, you wonderful new readers, you!) Thanks for including me in your mission to make young ladies with chronic illness know its not just possible, but important, to live chronically fabulous.
April 26, 2009 § 8 Comments
In Tonight’s Comic Adventure: Miss Waxie ponders the realities of invisible illness – and wonders what life would’ve been like had she actually gotten the tattoo of a demylinated nerve with CIDP as she’d daydreamed about after getting the diagnosis. She realizes it’s a good thing that she didn’t though, or else she’d be covered in autoimmune art from her head to her toes by now – though, if Kat Von D is willing, she still might be interested.
April 14, 2009 § 8 Comments
…Or how I learned to love and loathe prednisone, the autoimmune disease kryptonite.
In tonight’s comic episode: How the prednisone I took at high doses for my Rheumatoid Arthritis and Connective Tissue Disease gave me the life a 21 year old was meant to live, then took it away and left me with cataracts, a PICC line, and osteoporosis, without even so much as a dear John.
April 13, 2009 § 8 Comments
At age four, I began my autoimmune mess. One body, one condition. Celiac disease.
By 23 I’d developed rheumatoid arthritis, a variant of chronic inflammatory demylinating polyneuropathy (CIDP), undifferentiated connective tissue disease (very lupus-like), and hashimoto’s disease (likely hashimoto’s encephalopathy). Were that not enough, I have probable autoimmune hepatitis, acid reflux, various anemias, hyper-mobility, and a whole supporting cast of symptoms.
Despite this I maintain, mine is a comic life, indeed.