This Glass Is At Least A Quarter Full….

May 8, 2009 § 13 Comments

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In Tonight’s Comic Adventure: Miss Waxie takes a moment to enjoy a few victories. First, that she finally, kinda sorta got her perc prescription filled. And secondly, that despite what doctor’s here in Cleveland have said, the systemic celiac disease that she’d been diagnosed with in New York actually DOES exists. There’s victory in there, if you squint. It’s kind of like a magic eye. 

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§ 13 Responses to This Glass Is At Least A Quarter Full….

  • autoimmunelife says:

    Yay for the Percs.
    And yah – if you squint it is a victory.
    Small victories and sorta victories are better than none at least!
    ((Hugs))
    Hey – btw, did I email you the password to my password protected posts? If not let me know and I will. 🙂

  • RA Guy says:

    Love the title, love the image of the three skeletons!

    Now all I need is my acronym decoder ring…

    • misswaxie says:

      Apologies! CCF is the Cleveland Clinic Foundation, ie Cleveland Clinic Hospital (who are they funding? certainly not me!)

      …That decordering bit made me laugh, thanks!

  • Aviva says:

    Sigh on only getting half the amount of pain meds you need. 😦 But some are always better than none!!

    Love, love, love your comics, if I haven’t mentioned it before.

  • Debs says:

    I just discovered your blog — it’s terrific! You write out loud what I think…

    I too have CIDP, and other nasty idiopathic stuff –let’s just say your three skeletons are all my friends too, there is always something – you wouldn’t want to get into a routine or anything! I have been having IVIg for years — but now, the “process” has changed and nobody knows what to do! I can’t get it scheduled!!! So, I am looking for my minor victory, now that you have yours! 🙂

    Thanks for your excellent insights. Debs

    • misswaxie says:

      Thanks for stopping by Debs!

      These little victories always fall into place when you’ve long since stopped thinking they would happen. I hope yours comes along soon!

  • bitt says:

    How can that celiac not be fixed by being gluten-free? I’d get off gluten anyhow. They could be wrong for all we know. I’ve got celiac and finally after 10 years it is not the end of the world that I can’t eat wheat.

    • misswaxie says:

      I don’t know where the misunderstanding happened, but – I have been gluten-free for three years.

      As far as my neurological disease process, the issue isn’t whether or not I follow the celiac diet – which of course I do, as it has alevated so many of my gastro symptoms and my anemias – but that the neurological damage celiac has done to my system is not fixable / stoppable by going gluten-free.

      Though it’s little known, for a very small percentage of people, celiac disease creates a neuro-autoimmune disorder that is unresponsive to the gluten-free diet. Left untreated, the disease sprouts into multisystemic autoimmune disease (ie, what happened to me due to 16 years of misdiagnosis). Ignorance of this rare condition – studied inconjuction by the Columbia Celiac Disease Center and the Cornell Medical Center’s Division of Peripheral Neuropathy (articles are co written by Peter Green) – and the prevailing additude that going gluten-free “should” have fixed everything is, in essence, what caused my cascading health problems.

      Thanks for the concern though! Strict adherance to the gluten-free diet is important for all celiac’s!! I’m glad going GF has helped you.

      – Miss Waxie

  • Ah, the occasional “good” experience. I have never expected more of Drs than I expect of myself, and I am pretty raise my bar high type, WHY NOT? Life is short. At 21 such stupid medical exoeriences/no diagosis, “all in your head, good-bye” was ok, but at 53 it is no longer “OK;” time has run out for “try this, try that” and my patience has expired. The ONLY thing that keeps me going is laughing at the insanity of it all. Yeah, blame the glut, until the next bad day then the (another) Dr./researcher at Mayo or Johns freaking Hopkins will decide they got it all wrong. hahahahahahahahahahahhahhahahahaha

  • Gary Miller says:

    Glad you got a victory – even the small ones are worthy of a mention!

  • NeralefeSor says:

    Fantastic page: will come back=D

  • blogfrogger says:

    Thank you Miss Waxie!! I will create a section for Lupus and post the most updated news and journals. Your blog if wonderful!!! I not only enjoyed reading it but the information is so informative. Please feel free to add our site or blog to your blog roll. the site is http://www.lifealysis.com and the blog is http://lifealysisblog.wordpress.com

    Thanks so much
    Ross Fine

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